The UK’s position on legal medical cannabis continues to baffle the rest of the world. But, since 2016 nothing is that baffling anymore anyway.
Yet, the story of Emma Appleby, mother of 9-years epilepsy patient Taegan is one which takes some beating.
Emma Appleby with daughter Taegan and partner Lee Morton - Photo via BT.com
The UK regularly is the topic of scorn here on Smoke.io when it comes to its legal position — and especially the application of it — on legal medical cannabis. As many know, the UK last year approved medical use of cannabis for a very limited set of conditions.
Until recently, only very little legal medical cannabis was available in the UK. In fact, the world’s largest medical cannabis producer had its first batch of legal medical cannabis imported only few weeks ago.
Until then, it was mostly black market or expensive treatments which would more often than not lead back to the black market.
For Emma Appleby, whose daughter suffers the rare genetic condition Isodicentric 15 as well as Lennox-Gastaut syndrome, and can have up to 300 seizures a day due to the epilepsy which is part of her condition, this meant that barely any treatment was available, unless she went abroad.
“Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.”
Which effectively meant crowdfunding Taegan’s treatment, via a Just Giving page.
Initially, after medical cannabis was approved last November in the UK, Taegan was first treated with the legal Epidiolex, which helped for a limited period of time and limited, stopped even, most seizures during day. Yet, not when she was asleep.
After the positive effects plateaued, the mother — a long term campaigner for medical cannabis — decided she would defy laws and procure herself legal THC-containing cannabis oil abroad in order to hopefully improve Taegan’s condition. Thus she went to the Netherlands with her daughter and partner.
They found and confiscated from the mother illicit cannabis oil, in worth of £4,500 — almost US$ 5,900 at the time of writing.
The confiscated amount of oil would have provided three months of treatment for the 9-years old epilepsy patient.
Welcome to the UK, where right now... rien ne va plus. Definitely not common sense.